Decadron Day

I start chemo next week.  Last Wednesday I started a weekly dose of a steroid; Decadron. It has anti inflammatory action, and other stuff to help before I start and while I am on chemo.  It has some crummy side effects which I’m not experiencing except couldn’t sleep the first night…tonight I took an Ambien….It was disappointing that my hands and feet felt so much better for 2 days then back to before Decadron. This morning I took it on the road while I was walking Soba and Yaki. Packed in the dog gear bag; 10 pills with a banana to take it with.  It needs to be taken early with food and 1/2 hr after anti acid med.  So far so good…

The loved one

The loved one is my husband….and he is not to be referred to by name here or FB or anywhere.  Many of you know him and are not surprised.  He says “it’s toughest on the loved one you know”  all the victim has to do is suffer, have pain and endure but the loved one has to do everything else….

Breaking the news

It was supposed to be a “watchful waiting” cancer, a hangnail in a world of arterial hemorrhages. I had been having foot numbness and was in the process of my Dr. finding out what I had. After a few high bloodwork values I ended up in an oncologists office to have a bone marrow biopsy. She knew it was between 3 diagnosis; the one I have is Waldenstrom’s macroglobulinemia. On the day of the biopsy I told her if I was going to be sick I needed to know as I was getting a puppy in 3 weeks and wouldn’t take the pup. She gave me a big smile, assured me I wasn’t going to be sick and told me to get my puppy.

Symptoms increased, I now had numbness, pain and tingling (neuropathy) in my hands and labwork worsened. The oncologist who hadn’t wanted to discuss treatment said if I wanted I could move my appointment up and we could discuss the pros and cons of chemo. Limited access to appointments and poor communication with my Dr resulted in my asking for a second opinion with the City of Hope and a change in oncologists.

I knew this was a chronic condition without a cure but could be managed. My new Dr. told me the best case scenario was a “very good partial response” 5 years disease free after a 6 month 2 day a month chemotherapy regime. He said “I think you will be alive in 10 years” My husband and I left the office thinking now we had cancer. We picked up our paperwork and found out about the meds to pick up etc and looked at each other and simultaneously repeated the 10 year comment. My husband added “well actually you have 30 minutes less than 10 years now”